Re: test

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Hey I'm sorry for the delay. Yes, Dilnaz's studies were peer-reviewed.

Best regards,

Pat

On 3/20/03, SaraH wrote:
> On 3/20/03, Pat wrote:
>> On 3/20/03, SaraH wrote:
>>> On 3/17/03, Pat wrote:
>>>> Gots has a remarkable talent in writing. He can words things
>>>> in a way to suggest something in which the opposite is true,
>>>> and do so without it "technically" being a lie. But in other
>>>> cases, he simply lies as seen later on.
>>>>
>>>> The theme of the book is as follows: Since MCS is not an
>>>> immunologic disease, then it does not exist. Donald Dudley,
>>>> MD, wrote, "Multiple chemical sensitivity has none of the
>>>> characteristics of an immunologic disease, and as long as
>>>> immunologic criteria are required as proof of its [MCS?s]
>>>> existence, it will be seen as a non-disease".
>>>>
>>>> Gots likes to focus on the fact that the *cause* of MCS has
>>>> not yet been proven and that the mechanisms are unknown
>>>> (though this may change due to Pall's research). That is not a
>>>> rational approach. MS (Multiple Sclerosis) has no known
>>>> "uniform cause", nor even a diagnostic laboratory test (I
>>>> believe MCS now does however), yet those would not be excuses
>>>> to deny its harsh biological reality.
>>>>
>>>> Ashford and Miller talk about Gots' earlier work in 95 and 96.
>>>> Gots wrote, "[e]verything that is known about MCS to date
>>>> strongly suggests behavioral and psychogenic explanations for
>>>> symptoms".
>>>>
>>>> Ashford and Miller said the above statement was
>>>> "unjustifiable", and that, "Even if he [Gots] were correct
>>>> about the absence of physiological evidence (and he is not),
>>>> the presence of psychological problems in patients is not
>>>> proof of psychological causation. The work of Fiedler et al.
>>>> (1992), and that of Simon et al. (1990, 1993) amply
>>>> demonstrate that there are MCS patients with no premorbid or
>>>> subsequent psychological problems", write Ashford and Miller
>>>> (pg. 280). They go on to describe Gots' work of 95 and 96 as
>>>> "recycled opinion"
>>>>
>>>> Why does Gots manipulate data? As you know, Gots in the head
>>>> of ESRI (Environmental Sensitivities Research Institute).
>>>> ESRI's contributors and board members consist of pesticide
>>>> manufacturers; representatives from The Cosmetic, Toiletry,
>>>> and Fragrance Association; and other industry dominated
>>>> representatives.
>>>>
>>>> Reading Gots can make an MCS sufferer angry, but it won't do
>>>> much to contribute to scientific integrity.
>>>>
>>>> ~ Pat
>>>>
>>> Pat,
>>> You have the book down pat (no pun intended). You have
>>> obviously done a great deal of research on the subject. Thanks
>>> for your synopsis of the book!
>>>
>>> A couple of more illnesses that don't have one single test are
>>> headaches, PMS, Alzhemiers until the patient is dead and a
>>> biopsy of the brain can be done. Interesting that there's no
>>> test for a headache yet no one calls the person psychological
>>> when they complain of the pain. Doctor's even go on to
>>> differentiate between the types of headaches as cluster,
>>> miagraine, tension etc., without a single test to prove it.
>>>
>>> The last I heard Dr. Pall hadn't published his protocols. My
>>> treating Dr. happen to attend one of his lectures when he was
>>> in town. I also don't think that he has obtained necessary
>>> funding yet.:( If his theory proves right then there is hope
>>> for MCS suffers as the cycle can be broken!!!
>>>
>>> Good news is his protoccol doesn't cost big bucks!!! Sorry
>>> pharmaceticual companies.
>>>
>>> You might take a look at Integrated Defense System Overlaps as
>>> a disease Model With Examples for Multiple Chemical
>>> Sensitivities. It appears to me a nonmedical person that the
>>> cycle Pall talks about also overlap with this study. It makes
>>> perfect sense for the body to have set up a loop that it got
>>> stuck in. Don't alot of chronic pain suffers have the same
>>> thing occur even when the pain cause has been treated? I
>>> believe I saw something about chronic headaches and the same in
>>> the news recently.
>>>
>>> As for a test for MCS are you talking about the SPECT one?
>>> Otherwise as far a I know it is a combination of many tests. I
>>> would be extremely interested in any info you have on a test.
>>>
>>> Thanks for sharing info.
>>> SaraH
>>
>> Hey Sarah! The test I was referring to was a blood test for DPG
>> levels. Go to
>> http://www.environmentalhealth.ca/fall99breakthru.html for more
>> information.
>>
>> I think SPECT scans are also good but PET and FMRI scans are
>> probably better to have done (sidenote: FMRIs are safer than both
>> PET and SPECT).
>>
>> You brought up great examples of health conditions for which there
>> is no single test. With those doctors have no problem. But when it
>> comes to MCS doctors are all, "oh no forget it, I'm not going
>> there". Sadly, they do this despite strong, consistent data.
>>
>> Best regards,
>>
>> ~ Pat
>
> Pat,
> Thanks for the info. I did check out the site. What a brillant
> young lady!!
>
> The DPG makes perfect sense for people with CF,FM and even MCS.
> Without adequate oxygen the body uses anerobic respiration which
> produces lactic acid which in turn causes fatigue and inflamation.
> Isn't that what runners get cramps? Apparently like Pall's theory
> it becomes a cyclical condition.
>
> I did alittle more research. Dr. Paul Chenney has developed a
> technique of fooling the body into thinking that it's at a higher
> altitude and releasing more DPG. Apparently without side affects.
> http://www.immunesupport.com/library/showarticle.cfm/id/3214
>
> His article talks about swelling of the brain from lack of oxygen.
> That could explain brain fog and pressure headaches. That makes
> perfect sense as I wouldn't get traditional pain headaches but felt
> like my head was in a vice with exposures.
>
> Do you happen to know if the research Panjwani did has been peer
> reviewed yet? I couldn't locate that info.
>
> Please keep posting. It's amazing how when you read info from
> different fields/specialities that one can find overlaps.
> Unfortunately most doctors don't have the time to do the research
> to find out what their colleagues are doing and to put it all
> together.
> Thanks
> SaraH

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