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    Re: test

    Posted by pat on 3/24/03

    Hey I'm sorry for the delay. Yes, Dilnaz's studies were peer-reviewed.

    Best regards,


    On 3/20/03, SaraH wrote:
    > On 3/20/03, Pat wrote:
    >> On 3/20/03, SaraH wrote:
    >>> On 3/17/03, Pat wrote:
    >>>> Gots has a remarkable talent in writing. He can words things
    >>>> in a way to suggest something in which the opposite is true,
    >>>> and do so without it "technically" being a lie. But in other
    >>>> cases, he simply lies as seen later on.
    >>>> The theme of the book is as follows: Since MCS is not an
    >>>> immunologic disease, then it does not exist. Donald Dudley,
    >>>> MD, wrote, "Multiple chemical sensitivity has none of the
    >>>> characteristics of an immunologic disease, and as long as
    >>>> immunologic criteria are required as proof of its [MCS?s]
    >>>> existence, it will be seen as a non-disease".
    >>>> Gots likes to focus on the fact that the *cause* of MCS has
    >>>> not yet been proven and that the mechanisms are unknown
    >>>> (though this may change due to Pall's research). That is not a
    >>>> rational approach. MS (Multiple Sclerosis) has no known
    >>>> "uniform cause", nor even a diagnostic laboratory test (I
    >>>> believe MCS now does however), yet those would not be excuses
    >>>> to deny its harsh biological reality.
    >>>> Ashford and Miller talk about Gots' earlier work in 95 and 96.
    >>>> Gots wrote, "[e]verything that is known about MCS to date
    >>>> strongly suggests behavioral and psychogenic explanations for
    >>>> symptoms".
    >>>> Ashford and Miller said the above statement was
    >>>> "unjustifiable", and that, "Even if he [Gots] were correct
    >>>> about the absence of physiological evidence (and he is not),
    >>>> the presence of psychological problems in patients is not
    >>>> proof of psychological causation. The work of Fiedler et al.
    >>>> (1992), and that of Simon et al. (1990, 1993) amply
    >>>> demonstrate that there are MCS patients with no premorbid or
    >>>> subsequent psychological problems", write Ashford and Miller
    >>>> (pg. 280). They go on to describe Gots' work of 95 and 96 as
    >>>> "recycled opinion"
    >>>> Why does Gots manipulate data? As you know, Gots in the head
    >>>> of ESRI (Environmental Sensitivities Research Institute).
    >>>> ESRI's contributors and board members consist of pesticide
    >>>> manufacturers; representatives from The Cosmetic, Toiletry,
    >>>> and Fragrance Association; and other industry dominated
    >>>> representatives.
    >>>> Reading Gots can make an MCS sufferer angry, but it won't do
    >>>> much to contribute to scientific integrity.
    >>>> ~ Pat
    >>> Pat,
    >>> You have the book down pat (no pun intended). You have
    >>> obviously done a great deal of research on the subject. Thanks
    >>> for your synopsis of the book!
    >>> A couple of more illnesses that don't have one single test are
    >>> headaches, PMS, Alzhemiers until the patient is dead and a
    >>> biopsy of the brain can be done. Interesting that there's no
    >>> test for a headache yet no one calls the person psychological
    >>> when they complain of the pain. Doctor's even go on to
    >>> differentiate between the types of headaches as cluster,
    >>> miagraine, tension etc., without a single test to prove it.
    >>> The last I heard Dr. Pall hadn't published his protocols. My
    >>> treating Dr. happen to attend one of his lectures when he was
    >>> in town. I also don't think that he has obtained necessary
    >>> funding yet.:( If his theory proves right then there is hope
    >>> for MCS suffers as the cycle can be broken!!!
    >>> Good news is his protoccol doesn't cost big bucks!!! Sorry
    >>> pharmaceticual companies.
    >>> You might take a look at Integrated Defense System Overlaps as
    >>> a disease Model With Examples for Multiple Chemical
    >>> Sensitivities. It appears to me a nonmedical person that the
    >>> cycle Pall talks about also overlap with this study. It makes
    >>> perfect sense for the body to have set up a loop that it got
    >>> stuck in. Don't alot of chronic pain suffers have the same
    >>> thing occur even when the pain cause has been treated? I
    >>> believe I saw something about chronic headaches and the same in
    >>> the news recently.
    >>> As for a test for MCS are you talking about the SPECT one?
    >>> Otherwise as far a I know it is a combination of many tests. I
    >>> would be extremely interested in any info you have on a test.
    >>> Thanks for sharing info.
    >>> SaraH
    >> Hey Sarah! The test I was referring to was a blood test for DPG
    >> levels. Go to
    >> for more
    >> information.
    >> I think SPECT scans are also good but PET and FMRI scans are
    >> probably better to have done (sidenote: FMRIs are safer than both
    >> PET and SPECT).
    >> You brought up great examples of health conditions for which there
    >> is no single test. With those doctors have no problem. But when it
    >> comes to MCS doctors are all, "oh no forget it, I'm not going
    >> there". Sadly, they do this despite strong, consistent data.
    >> Best regards,
    >> ~ Pat
    > Pat,
    > Thanks for the info. I did check out the site. What a brillant
    > young lady!!
    > The DPG makes perfect sense for people with CF,FM and even MCS.
    > Without adequate oxygen the body uses anerobic respiration which
    > produces lactic acid which in turn causes fatigue and inflamation.
    > Isn't that what runners get cramps? Apparently like Pall's theory
    > it becomes a cyclical condition.
    > I did alittle more research. Dr. Paul Chenney has developed a
    > technique of fooling the body into thinking that it's at a higher
    > altitude and releasing more DPG. Apparently without side affects.
    > His article talks about swelling of the brain from lack of oxygen.
    > That could explain brain fog and pressure headaches. That makes
    > perfect sense as I wouldn't get traditional pain headaches but felt
    > like my head was in a vice with exposures.
    > Do you happen to know if the research Panjwani did has been peer
    > reviewed yet? I couldn't locate that info.
    > Please keep posting. It's amazing how when you read info from
    > different fields/specialities that one can find overlaps.
    > Unfortunately most doctors don't have the time to do the research
    > to find out what their colleagues are doing and to put it all
    > together.
    > Thanks
    > SaraH

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