Re: MCS, VCS, CSM, one case

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Pat:

I found the following MCS related post by johncodie interesting, and
don't understand his complaint here. According to the email, it looks
like a person was ill, and eventually found effective treatment. What
is wrong with that? No easier way to reduce liability than to reduce,
or eliminate, the impact? Solve the problem?

ff

On 6/27/03, johncodie wrote:
> Time to take whatever you and Sally take for your VCS screening. You
> two do have a common link. It is Dr. Richie Shoemaker. He did not
> know of the Doctor that was referring to him as a Quack, so I guess
> it could not be true. Some of Dr. Shoemaker's request for data from
> a web herb site. And Frank just remember your one of his patients.
>
> Hi there. I am a 50 year old woman now. Back in 1989 I began to have
> symptoms that were diagnosed in 1992 as "fibromyalgia". I saw many
> many specialists while looking for answers. But before I started on
> this treck to find an answer, I went to the psychiatrist with the
> most "clout" in Tampa Bay. I believed if a woman tells a doctor she
> is "tired all of the time" his first thought will be "she's sick in
> the head". I began sessions with the psychiatrist to either get my
> illness diagnosed, or to prove to the medical doctors I wasn't making
> this up in my head. After three sessions the psychiatrist said "your
> illness is not in your head. It's in your body." I then had him put
> that in writing and carried it with me to every doctor. As you might
> guess, out of the first 5 specialists, 3 of them started to tell me
> it was an imaginary illness. Then I whipped out the well known
> psychiatrist's note and told these "specialists" they must refer me
> to someone who isn't going to stop looking for answers just because
> they cannot figure it out. However, even though I finally got a
> diagnosis, and finally got treatment that "helped" me cope, I wasn't
> satisfied. I got lectures about Job, from the Bible, who probably had
> fibromyalgia and was "assured" since Jesus's time no one could figure
> out the cause. Maybe that is so, but:
>
> Here in Florida, and throughout the North American Continent, DuPont
> distributed a pesticide which was intentionally contaminated with
> illegal ingredient(s). The pesticide was recalled in 1992. Because so
> many people got sick with the same or similar symptoms many of us
> formed a secret alliance. Some took the road for compensation and
> revenge against DuPont. Some took the road to find a treatment for
> our illness. In any event, one of those people heard Dr. Richie
> Shoemaker on a talk show (radio I think). He called Dr. Shoemaker and
> took the vision test. He was so excited with the encouragement Dr.
> Shoemaker gave him he purchased a vision test kit and learned how to
> conduct the test. At his invitation, I went to the man's house (in
> Florida) and took the vision test. He faxed the results to Dr.
> Shoemaker (in Maryland) and we waited about 5 minutes for Dr.
> Shoemaker to call back. At this point I was on (excuse my spelling),
> prednisone, hydrocordone, Paxil, Xanax, several muscle relaxers, a
> sleeping pill, and the three times a month pain shot, and the three
> times a week-three hours per session hospital in-house physical
> therapy treatment. I had constant headaches, couldn't sit more than
> 15 minutes, twitched all over (too much for the neurologist to do an
> EEG), diarrhea (IBS), vomiting, an ulcer, wearing diapers due to my
> inability to hold my urine, short-term memory loss, couldn't add 2+2
> ( in the 70's and 80's I was a Research Assistant at Harvard and
> Johns Hopkins, and did my graduate work at George Washington
> University), sometimes couldn't even remember my birthdate, never
> could remember how old I was, and it took me 3 minutes to stand erect
> after I sat in a car more than 15 minutes, and skin problems that
> included rashes, and blistering. And my moods!! Oh such outbursts I
> had. Uncontrollable. When I spoke to Dr. Shoemaker that first time I
> was slurring my speech too. I also had many car accidents (little
> ones) whereby I'd hit curbs, run into fences, no depth perception to
> speak of.
>
> I went on Dr. Shoemaker's treatment as soon as I could get the
> prescription. Within two weeks I was no longer having diarrhea,
> incontinence (urine), twitching, mood swings, physical therapy, short-
> term memory loss, rashes. I could get out of a car after 1 hour of
> driving and hit the ground running. I could ride my horse without
> being an invalid in bed, and my husband dragging me to the bathroom
> for the next two weeks. I can take an IQ test and be e-mailed by
> Mensa to take their test (my mother, her brothers, and my father
> are/were Mensa). And get THIS, I no longer take any pain medicines
> regularly (just the occassionaly asprin), muscle relaxers, anti-
> depressants, sleeping pills, or have any physical therapy or shots. I
> can go to the gym and work-out too!
>
> As for the success rate. All of the people in our little alliance,
> ALL of them who take Dr. Shoemaker's medicine, ALL of them who were
> diagnosed with depression and fibromyalgia, are in the same condition
> as ME!!!! I think the success rate can be given a 90&37;. New people
who
> are introduced to Dr. Shoemaker by us and are NOT diagnosed by the
> vision test as having a chronic neurotoxic syndrome do not get the
> treatment (to the best of my knowledge). But new people who take the
> vision test,and were not exposed (knowingly) to the DuPont pesticide,
> and who are diagnosed with the chronic neurotoxic syndrome are having
> success with the treatment. I think the success rate could be as high
> as 90&37;.
>
> If you call Dr. Shoemaker, he will not acknowledge the pesticide
> distributed by DuPont was the cause of our problems. However, he is
> getting cooperation from the Federal agencies in the form of grants
> ($,$$$,$$$) to research all of the possibilities. Dr. Shoemaker
> apparently believes my alliance group was exposed to toxins that
> either were created by the pesticide, or soils affected by pesticides
> in general. I am never sure of his thoughts because I only call him
> when I am in crisis. I hate taking the medicine because it is like
> taking Metamusal. So I go off it until one of my symptoms starts to
> get out of hand. The first symptom is ususally insomnia. But muscle
> aches, and other flu like symptoms sometimes come first. When that
> happens it takes at least 5 days of treatment before I get better.
>
> I hope you are excited enough to buy one of his books. Or even to
> call him. Your web site was very interesting to me. I sincerely hope
> you and other visitors to your site can benefit from Dr.
> Shoemaker's "discovery". I was the one who eventually told Dr.
> Shoemaker that his medicine, cholestyramine, had been used to
> detoxify people exposed and made sick by organochlorines many many
> years ago. It just isn't common knowledge because the most commonly
> treated poisoning was DDT exposures. And DDT hasn't been used in the
> USA for a very long time.
>
> Sincerely,
> Sally

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