Re: Blood-brain barrier

More | Report Post

I got the same response about having to autopsy after death to
find out. That isn't true, there are distinct changes that take
place that can be seen on pet and cat scans.

On 9/07/03, liz wrote:
> Thanks for your response Jenny. I agree! I doubt William Pall
will answr anyletter I send but I think I will send him a thank
you note for his research efforts. The neurologists I've seen were
arrogant, uneducated(about mcs) jerks but I wish I could ask them
if thy had tools(MRI's etc)that could tell if the blood-brain
barrier is damaged. The neuros I saw said my insurace wouldn't pay
for PET or Spect so insurance is factor too. I just keep thinking
how hard itwas for them to diagnose alzheimers in young people(eg
40 yrs) because their lack of whatever. Something about only being
able to see damage upon cutting brain open after death. > Also, I
can handle my MCS syptoms more than I can handle the ridicule from
people(If I get one more smirk..) and feeling like I'm the only
one trying to educate everyone(family to strangers that hurt me to
doctor to news people). Its the old saying, "there's none so deaf
as those that don't want to hear". People are now proud of putting
up non-smoking signs(yet still not educated that its anything more
than tobacco) but its because doctors and government authority
figures influence people. Many public health researcher, EPA
researchers(indoor air and pesticides), Harvard's Brigham Women's
Hospital(frag free!)believe us but they seem to be hidding. I
think we can't do it with authority figures standing up and
speaking out for us. It helped a little bit in Nova Scotia-
important politians helped. MCS was diagnosed fifty years
ago...was the anti smoking movement better organized or was the
AMA the driving force?

MCS/MCSS Chatboard

LATEST POSTS | BY TOPICS | SUBMIT A POST