Hey guys, thanks for your responses. If you read my post, you will realize that I had no idea of the
results of my bloodwork. I had had an appt for a long time with the lyme specialist, even before I
learned about Dr. Shoe. And, Dr. Shoe had told me during my visit that I indeed had (or 'had had')
Lyme. I had a positive spinal tap about a year ago. I had no reason to cancel the longstanding
appointment. And in my mind, he had no reason to act negatively towards me for making it.
As far as questioning 'bedside' manner, I think we are doing something more than that ff. I am / was
commenting on 'communication'. That skill is just as important as medical knowledge when dealing
firsthand with patients. Notice that I did not attack or question his medical prowess or know how.
Nor did I attack his concern for patients.
Now, in response to questioning doctors, I think it is healthy to get more than one opinion. I should
not have to 'worry' about questioning a doctor, by MERELY visiting another one. Medical treatment
should involve 'discussion'... dialogue...impressions.. both from patient and doc. I question how
much of that can take place in an arranged 15 min phone call to discuss results or follow-up
problems. Not to mention when the clock is ticking and every 15 is $50.
As another side note: At no point in time did I question whether I was going to try Dr. Shoe's
protocol. I knew I would after reading his research, taking the online VCS test, and after meeting
with him. I simply went to a specialist whom I had met months ago at a conference. THAT IS ALL I
DID. You are implying that it is not ok for me to get offended, but that it is ok for him to do so.
I understand you wanting to focus on getting better, and the actual protocoal, but did you read
through my post ff? I am very much in line with that. Be sure to read through to the end of this
one please. I was not commenting merely on 'bedside manner', but projected politics (sometimes
unbeknownst, and at the expense of) patients.
I am glad that you (and others) were helped by Dr. Shoe. That is great to hear, I was very happy
when I read that. I want to caution you though, on your quick assessment of other's experiences and
intuitions.
Here's my update: whenever I try the CSM I get violently dehydrated, and can barely sleep during the
night. Called the office for help, my GP could be contacted? Made it clear I wasn't seeing anyone
else at this point (should I even have to do that?). Response from him (via the office) was that he
would make some time in the next month for me to schedule an appointment, call beforehand to give a
credit card number once again.
Another side note: This would make the third credit card phone conference, and I already have been
denied most of the coverage for the in-person visit (I have the insurance that they reported to me
was covered; Blue Cross). I do have a POS, and it was not considered in-network.
Back to my issue: I am startling awake with what feels like 'shocks' of dehydration. Cannot get
uninterrupted sleep for more than 20 min at a time. I made this clear. So at this point, I don't
feel like I have any choices, I am at the mercy of money, politics, whatever the case. I am spending
money I don't have. I feel like I am going to die from shocks, shaking, and dehydration-- to trust
in a doctor, I need for them to take me seriously and respond appropriately, esp if I have had an
adverse reaction to their medication.
I think I have been very open, non-bashing, non-judgemental. I have been reporting the facts as they
happen to me. That is it. I put the story out there, people can make up their own minds, or
question as they go along.
Tracy