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Re: Defending Dr. Shoemaker
Posted by Tracy on 1/18/08

    Hi, ff,
    Thanks for your response. I believe I understand totally the passion you have
    about one MD who seems to care a lot about searching for patterns behind illness,
    and about finding the truth and not treating symptoms. I am putting my own words
    to it, but I think this is what you are saying.

    I'm not sure about your question "Where does all what get me/us?". I at first
    posted my thoughts on his impressive systemic approach, then posted my experience
    with him and following this, my analysis of it. You and other folks can take from
    it what you will.

    I want to update as well. It seems like my story has an end at this point. ff,
    If this story has parts of it that are counter to your experience (well we
    already know it does), I suppose you can just feel greatful for the fact that you
    were helped.

    Dr. Shoemaker helped me to learn a bit about myself, and his research and
    compassion for what he does, led me to do more research. For instance, the fact
    that genes are not just a have/have-not in the body, that they can be turned on
    and off, is not something the average person knows. It is good to learn about
    that and also how body systems are so closely connected. I am greatful for those
    blood levels he took, no other doctor has looked at them. No doctor really
    understands them, I so wish he would communicate with them. It seems that I have
    to get a doctor to call over to him- which I have been having trouble with.

    My body seems to be too sensitive for CSM right now. And I called his office to
    ask for feedback on why I had severe parch-shock / dehydration episodes after
    taking the CSM. I couldn't sleep at all, was so dehydrated, having 'dry
    attacks'. These episodes make me feel like I cannot help myself and will DIE.
    They are that bad. His office told me I needed to schedule another phone
    session, and that my regular doctor/GP could be there. And so I did just that as
    soon as they were both available. Now, during the last two phone sessions,
    someone from the office called me right before he was ready, and asked for a
    credit card number. Following this, Dr. Shoemaker would call me when he was
    ready. However, this did not happen. I was in my doctor's office and did not get
    a call. I waited for about 10 minutes and then called over. The secretary said
    that I was supposed to call in myself at the appt time. I told her that I was
    surprised, that that was not what I was told in the past, or what happened in the
    past. She told me that he was on another phone call, that I had missed my
    appointment, and that the woman who schedules his phone conferences was out to
    lunch. I asked that she call me back, as I was with my doctor, and we were both
    concerned about my adverse reaction to the CSM. Dr. Shoemaker had expressed
    concern about my levels, esp my c4a being 28,500 (healthy range goes from 0-2000)-
    I thought for sure he would get back to me.

    I never got a return call. That was over two weeks ago. Several days later I
    faxed the information from my doctor (cortisol test, sleep test, and heavy metal
    test). All of the results were very out of whack. It turns out that I have
    mercury poisoning (0-5 healthy range, I registered at a 54), along with lead and
    bismuth toxicity. It was the Lyme doctor that gave me these tests. I also
    learned that my gluten sensitivity gene has been turned on. So my mold situation
    is a bit more complex at this point, likely due to the Lyme, heavy metals and
    gluten intolerance that I did not have pinpointed and addressed in a timely
    manner.

    I cannot emphasize this enough...My biggest surprise is that I NEVER HEARD BACK.
    NOR DID MY GP/Doc. Very upsetting, I had asked if I needed to come back to MD to
    get the MR Spectroscopy (he claimed that it would be best to get it done by him),
    that many labs do it improperly, etc.

    Above anything I hope Dr. Shoemaker got keyed into looking at those types of
    tests that he did NOT test for, because clearly mold was not the whole piece to
    my puzzle. I am left with the assumption that because the Lyme doc (whom he
    dislikes)tested these things, he wants to have nothing to do with it. Even
    though I clearly said I would not go back to him. That is the only rational
    conclusion I could come to, as like you, I felt he was a compassionate man.

    He knows that I moved out of my home, due to the ERMI mold report. I was
    listening and following what he had told me to do (took CSM and Actos, went on
    the diet). So I don't get it. I like his writing, how he integrates things, and
    I thought he was very pleasant when I saw him. Something happened though, once
    he heard that I went to a (previously scheduled) appointment with a Lyme doctor.
    I will never go back to that Lyme doctor (my own choice), yet it seems like
    Shoemaker doesn't want to have anything to do with me regardless.

    I plan to start chelation therapy to rid myself of the mercury and then the lead
    and bismuth. I am hoping that that will help me to handle other detoxing
    afterward. The reason why the chelation IV's are safe is that they are monitored
    closely and IV's include Vitamin packs and saline (my adrenal levels and
    magnesium are so out of whack). However I cannot seem to tolerate oral
    supplementation. My former Lyme doctor mentioned that Nano Chitosan is a
    somewhat safer way to do what CSM does. I would LOVE to get Dr. Shoemaker's
    opinion on this and a lot of other things.

    The last thing to mention is that I was told that his office accepts my
    insurance. I was told to make sure that my card had a suitcase on it (it does).
    However, not only was the visit only partially covered, but the labs he took were
    not covered either (cost far beyond what he has listed in his packet). He did
    some genetic testing for me- while the lab itself accepts my insurance, because
    he is an out of state doctor ordering them, they were $7000 each (several were
    taken). At this point I am trying to help myself get better and I cannot even
    think about my newly incurred financial ruin.

    That is my story.
    ........................
    Signing off,
    Tracy

    On 1/09/08, ff wrote:
    > Hi, Tracy:
    >
    > My first recollection is of thoughts I had about, not necessarily your
    > situation, but the broad picture. That is, many, in similar situations as
    > yours, go through extended efforts and mutiple visits, and often we hear about
    > the inability, unwillingness, or even refusal of MD's to devote time/interest
    > needed to solve these problems.
    >
    > I think that the total of such experiences above, when weighed against one MD
    > that does address the problem, warrants focusing on the help from that one MD.
    >
    > Regarding the post/s below, ?, I don't understand. Where does all of that
    > get you/us? As far as agreeing/disagreeing, I appreciate differing
    > opinions...when presented in a constructive manner. I'm not going to argue or
    > debate it, unless you find it necessary or helpful in some way, and I
    > certainly do not mind hearing criticism. I pretty patient, tolerant, have at
    > it. But, I always, hope the best for everyone.
    >
    > ff
    >
    >


     
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