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Re: Defending Dr. Shoemaker
Posted by ff on 1/19/08


    Tracy -

    I don't know how I can be any nicer about than the last message to you. I do seem
    to sense your frustration with the comlicated health problems you have, and I'm
    sure many that have had similar problems, including myself, understand that.
    Possibly, this was a factor in your efforts/relationship with a number of MD's?

    The one thing I will comment on, and don't take this personally, but the detailed
    information from you is in my opinion too much to get into in a public forum, and
    regarding any MD you have seen, whether you're right or wrong, the other side
    cannot be presented at all. As such...

    If there's just some insistence on your part about some aspect, including
    something I've said that you fell was wrong, then fine. I still ask, where does
    that get us? I can't get onto specifics because I'm far from being an MD or
    health care...

    I am glad you're getting answers, and sincerely hope all goes well for you.

    ff

    On 1/18/08, Tracy wrote:
    > Hi, ff,
    > Thanks for your response. I believe I understand totally the passion you have
    > about one MD who seems to care a lot about searching for patterns behind
    illness,
    > and about finding the truth and not treating symptoms. I am putting my own
    words
    > to it, but I think this is what you are saying.
    >
    > I'm not sure about your question "Where does all what get me/us?". I at first
    > posted my thoughts on his impressive systemic approach, then posted my
    experience
    > with him and following this, my analysis of it. You and other folks can take
    from
    > it what you will.
    >
    > I want to update as well. It seems like my story has an end at this point. ff,
    > If this story has parts of it that are counter to your experience (well we
    > already know it does), I suppose you can just feel greatful for the fact that
    you
    > were helped.
    >
    > Dr. Shoemaker helped me to learn a bit about myself, and his research and
    > compassion for what he does, led me to do more research. For instance, the fact
    > that genes are not just a have/have-not in the body, that they can be turned on
    > and off, is not something the average person knows. It is good to learn about
    > that and also how body systems are so closely connected. I am greatful for
    those
    > blood levels he took, no other doctor has looked at them. No doctor really
    > understands them, I so wish he would communicate with them. It seems that I
    have
    > to get a doctor to call over to him- which I have been having trouble with.
    >
    > My body seems to be too sensitive for CSM right now. And I called his office to
    > ask for feedback on why I had severe parch-shock / dehydration episodes after
    > taking the CSM. I couldn't sleep at all, was so dehydrated, having 'dry
    > attacks'. These episodes make me feel like I cannot help myself and will DIE.
    > They are that bad. His office told me I needed to schedule another phone
    > session, and that my regular doctor/GP could be there. And so I did just that
    as
    > soon as they were both available. Now, during the last two phone sessions,
    > someone from the office called me right before he was ready, and asked for a
    > credit card number. Following this, Dr. Shoemaker would call me when he was
    > ready. However, this did not happen. I was in my doctor's office and did not
    get
    > a call. I waited for about 10 minutes and then called over. The secretary said
    > that I was supposed to call in myself at the appt time. I told her that I was
    > surprised, that that was not what I was told in the past, or what happened in
    the
    > past. She told me that he was on another phone call, that I had missed my
    > appointment, and that the woman who schedules his phone conferences was out to
    > lunch. I asked that she call me back, as I was with my doctor, and we were both
    > concerned about my adverse reaction to the CSM. Dr. Shoemaker had expressed
    > concern about my levels, esp my c4a being 28,500 (healthy range goes from 0-
    2000)-
    > I thought for sure he would get back to me.
    >
    > I never got a return call. That was over two weeks ago. Several days later I
    > faxed the information from my doctor (cortisol test, sleep test, and heavy metal
    > test). All of the results were very out of whack. It turns out that I have
    > mercury poisoning (0-5 healthy range, I registered at a 54), along with lead and
    > bismuth toxicity. It was the Lyme doctor that gave me these tests. I also
    > learned that my gluten sensitivity gene has been turned on. So my mold
    situation
    > is a bit more complex at this point, likely due to the Lyme, heavy metals and
    > gluten intolerance that I did not have pinpointed and addressed in a timely
    > manner.
    >
    > I cannot emphasize this enough...My biggest surprise is that I NEVER HEARD
    BACK.
    > NOR DID MY GP/Doc. Very upsetting, I had asked if I needed to come back to MD to
    > get the MR Spectroscopy (he claimed that it would be best to get it done by
    him),
    > that many labs do it improperly, etc.
    >
    > Above anything I hope Dr. Shoemaker got keyed into looking at those types of
    > tests that he did NOT test for, because clearly mold was not the whole piece to
    > my puzzle. I am left with the assumption that because the Lyme doc (whom he
    > dislikes)tested these things, he wants to have nothing to do with it. Even
    > though I clearly said I would not go back to him. That is the only rational
    > conclusion I could come to, as like you, I felt he was a compassionate man.
    >
    > He knows that I moved out of my home, due to the ERMI mold report. I was
    > listening and following what he had told me to do (took CSM and Actos, went on
    > the diet). So I don't get it. I like his writing, how he integrates things,
    and
    > I thought he was very pleasant when I saw him. Something happened though, once
    > he heard that I went to a (previously scheduled) appointment with a Lyme
    doctor.
    > I will never go back to that Lyme doctor (my own choice), yet it seems like
    > Shoemaker doesn't want to have anything to do with me regardless.
    >
    > I plan to start chelation therapy to rid myself of the mercury and then the lead
    > and bismuth. I am hoping that that will help me to handle other detoxing
    > afterward. The reason why the chelation IV's are safe is that they are
    monitored
    > closely and IV's include Vitamin packs and saline (my adrenal levels and
    > magnesium are so out of whack). However I cannot seem to tolerate oral
    > supplementation. My former Lyme doctor mentioned that Nano Chitosan is a
    > somewhat safer way to do what CSM does. I would LOVE to get Dr. Shoemaker's
    > opinion on this and a lot of other things.
    >
    > The last thing to mention is that I was told that his office accepts my
    > insurance. I was told to make sure that my card had a suitcase on it (it
    does).
    > However, not only was the visit only partially covered, but the labs he took
    were
    > not covered either (cost far beyond what he has listed in his packet). He did
    > some genetic testing for me- while the lab itself accepts my insurance, because
    > he is an out of state doctor ordering them, they were $7000 each (several were
    > taken). At this point I am trying to help myself get better and I cannot even
    > think about my newly incurred financial ruin.
    >
    > That is my story.
    > ........................
    > Signing off,
    > Tracy
    >
    > On 1/09/08, ff wrote:
    >> Hi, Tracy:
    >>
    >> My first recollection is of thoughts I had about, not necessarily your
    >> situation, but the broad picture. That is, many, in similar situations as
    >> yours, go through extended efforts and mutiple visits, and often we hear about
    >> the inability, unwillingness, or even refusal of MD's to devote time/interest
    >> needed to solve these problems.
    >>
    >> I think that the total of such experiences above, when weighed against one MD
    >> that does address the problem, warrants focusing on the help from that one MD.
    >>
    >> Regarding the post/s below, ?, I don't understand. Where does all of that
    >> get you/us? As far as agreeing/disagreeing, I appreciate differing
    >> opinions...when presented in a constructive manner. I'm not going to argue or
    >> debate it, unless you find it necessary or helpful in some way, and I
    >> certainly do not mind hearing criticism. I pretty patient, tolerant, have at
    >> it. But, I always, hope the best for everyone.
    >>
    >> ff
    >>
    >>


     
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