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Re: Defending Dr. Shoemaker
Posted by Ticked Off on 1/19/08

    Tracy,
    I am sorry you are going through this. What state are you in? I know of a couple
    of good lyme doctors in Virginia.I am slowly getting better.
    Ticked

    On 1/18/08, Tracy wrote:
    > Hi, ff,
    > Thanks for your response. I believe I understand totally the passion you have
    > about one MD who seems to care a lot about searching for patterns behind
    illness,
    > and about finding the truth and not treating symptoms. I am putting my own
    words
    > to it, but I think this is what you are saying.
    >
    > I'm not sure about your question "Where does all what get me/us?". I at first
    > posted my thoughts on his impressive systemic approach, then posted my
    experience
    > with him and following this, my analysis of it. You and other folks can take
    from
    > it what you will.
    >
    > I want to update as well. It seems like my story has an end at this point. ff,
    > If this story has parts of it that are counter to your experience (well we
    > already know it does), I suppose you can just feel greatful for the fact that
    you
    > were helped.
    >
    > Dr. Shoemaker helped me to learn a bit about myself, and his research and
    > compassion for what he does, led me to do more research. For instance, the fact
    > that genes are not just a have/have-not in the body, that they can be turned on
    > and off, is not something the average person knows. It is good to learn about
    > that and also how body systems are so closely connected. I am greatful for
    those
    > blood levels he took, no other doctor has looked at them. No doctor really
    > understands them, I so wish he would communicate with them. It seems that I
    have
    > to get a doctor to call over to him- which I have been having trouble with.
    >
    > My body seems to be too sensitive for CSM right now. And I called his office to
    > ask for feedback on why I had severe parch-shock / dehydration episodes after
    > taking the CSM. I couldn't sleep at all, was so dehydrated, having 'dry
    > attacks'. These episodes make me feel like I cannot help myself and will DIE.
    > They are that bad. His office told me I needed to schedule another phone
    > session, and that my regular doctor/GP could be there. And so I did just that
    as
    > soon as they were both available. Now, during the last two phone sessions,
    > someone from the office called me right before he was ready, and asked for a
    > credit card number. Following this, Dr. Shoemaker would call me when he was
    > ready. However, this did not happen. I was in my doctor's office and did not
    get
    > a call. I waited for about 10 minutes and then called over. The secretary said
    > that I was supposed to call in myself at the appt time. I told her that I was
    > surprised, that that was not what I was told in the past, or what happened in
    the
    > past. She told me that he was on another phone call, that I had missed my
    > appointment, and that the woman who schedules his phone conferences was out to
    > lunch. I asked that she call me back, as I was with my doctor, and we were both
    > concerned about my adverse reaction to the CSM. Dr. Shoemaker had expressed
    > concern about my levels, esp my c4a being 28,500 (healthy range goes from 0-
    2000)-
    > I thought for sure he would get back to me.
    >
    > I never got a return call. That was over two weeks ago. Several days later I
    > faxed the information from my doctor (cortisol test, sleep test, and heavy metal
    > test). All of the results were very out of whack. It turns out that I have
    > mercury poisoning (0-5 healthy range, I registered at a 54), along with lead and
    > bismuth toxicity. It was the Lyme doctor that gave me these tests. I also
    > learned that my gluten sensitivity gene has been turned on. So my mold
    situation
    > is a bit more complex at this point, likely due to the Lyme, heavy metals and
    > gluten intolerance that I did not have pinpointed and addressed in a timely
    > manner.
    >
    > I cannot emphasize this enough...My biggest surprise is that I NEVER HEARD
    BACK.
    > NOR DID MY GP/Doc. Very upsetting, I had asked if I needed to come back to MD to
    > get the MR Spectroscopy (he claimed that it would be best to get it done by
    him),
    > that many labs do it improperly, etc.
    >
    > Above anything I hope Dr. Shoemaker got keyed into looking at those types of
    > tests that he did NOT test for, because clearly mold was not the whole piece to
    > my puzzle. I am left with the assumption that because the Lyme doc (whom he
    > dislikes)tested these things, he wants to have nothing to do with it. Even
    > though I clearly said I would not go back to him. That is the only rational
    > conclusion I could come to, as like you, I felt he was a compassionate man.
    >
    > He knows that I moved out of my home, due to the ERMI mold report. I was
    > listening and following what he had told me to do (took CSM and Actos, went on
    > the diet). So I don't get it. I like his writing, how he integrates things,
    and
    > I thought he was very pleasant when I saw him. Something happened though, once
    > he heard that I went to a (previously scheduled) appointment with a Lyme
    doctor.
    > I will never go back to that Lyme doctor (my own choice), yet it seems like
    > Shoemaker doesn't want to have anything to do with me regardless.
    >
    > I plan to start chelation therapy to rid myself of the mercury and then the lead
    > and bismuth. I am hoping that that will help me to handle other detoxing
    > afterward. The reason why the chelation IV's are safe is that they are
    monitored
    > closely and IV's include Vitamin packs and saline (my adrenal levels and
    > magnesium are so out of whack). However I cannot seem to tolerate oral
    > supplementation. My former Lyme doctor mentioned that Nano Chitosan is a
    > somewhat safer way to do what CSM does. I would LOVE to get Dr. Shoemaker's
    > opinion on this and a lot of other things.
    >
    > The last thing to mention is that I was told that his office accepts my
    > insurance. I was told to make sure that my card had a suitcase on it (it
    does).
    > However, not only was the visit only partially covered, but the labs he took
    were
    > not covered either (cost far beyond what he has listed in his packet). He did
    > some genetic testing for me- while the lab itself accepts my insurance, because
    > he is an out of state doctor ordering them, they were $7000 each (several were
    > taken). At this point I am trying to help myself get better and I cannot even
    > think about my newly incurred financial ruin.
    >
    > That is my story.
    > ........................
    > Signing off,
    > Tracy
    >
    > On 1/09/08, ff wrote:
    >> Hi, Tracy:
    >>
    >> My first recollection is of thoughts I had about, not necessarily your
    >> situation, but the broad picture. That is, many, in similar situations as
    >> yours, go through extended efforts and mutiple visits, and often we hear about
    >> the inability, unwillingness, or even refusal of MD's to devote time/interest
    >> needed to solve these problems.
    >>
    >> I think that the total of such experiences above, when weighed against one MD
    >> that does address the problem, warrants focusing on the help from that one MD.
    >>
    >> Regarding the post/s below, ?, I don't understand. Where does all of that
    >> get you/us? As far as agreeing/disagreeing, I appreciate differing
    >> opinions...when presented in a constructive manner. I'm not going to argue or
    >> debate it, unless you find it necessary or helpful in some way, and I
    >> certainly do not mind hearing criticism. I pretty patient, tolerant, have at
    >> it. But, I always, hope the best for everyone.
    >>
    >> ff
    >>
    >>


     
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