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Re: Dr. Nancy Klimas, A BAD EXPERIENCE
Posted by ErikMoldWarrior on 10/21/08

    On 10/21/08, Deborah wrote:
    > Many doctors get tunnel vision when they are working on particular illnesses that mainstream medicine fails to or
    > inadequately addresses; it becomes the diagnosis du jour.
    >
    > Not an excuse, just an explanation. I have never met the doctor nor know anything about her.
    >
    > On another note, chronic fatigue is thought to be caused by Epstein-Barr, chemical sensitivities and/or exposures,
    > misdiagnoses and thus unnecessary or improper treatment ( read antibiotics, steroids, etc ), or a varying combination of
    > all three.
    >


    If you want to hear the most amazing story, read Osler's Web by Hillary Johnson.
    The key word here is "Syndrome", to differentiate the 1988 Holmes "CFS definition" from mere prolonged fatigue.
    In the early 1980's outbreaks of inexplicable "chronic mononucleosis" caused the CDC to postulate a vague descripion that
    was called "Chronic Epstein Barr Virus Syndrome (CEBV Syndrome)"
    Dr Cheney and Dr Peterson of Incline Village tried to "impress" this concept upon an outbreak of illness that occurrred
    there in 1985, and found that this was completely wrong.
    The immune parameters didn't match.
    Dr Peterson called the CDC for clarification, and the epidemiologists Jon Kaplan and Gary Holmes came out to conduct a
    quick investigation - and reassure these "confused doctors" that all they were looking at was "CEBV Syndrome".

    But Dr Cheney's evidence was so undeniable that the CDC was forced to abandon their "Chronic Mono" concept and rename the
    illness - which wound up being "Chronic Fatigue Syndrome".
    The patients used as prototypes had deformed B cells, low red cell mass, abnormally low erythrocyte sedimentation rates -
    ween ONLY in less than half a dozen other illnesses, depleted RNase-L (an antiviral enzyme), extremely abnormal levels of
    platelet debris, high Interleukin 2, and a whole slew of other weirdnesses that are too numerous to list here.

    The bottom line is that EBV was only reactivated, and was not inherent nor necessary to the syndrome.

    It is quite ironic that the creation of CFS was forced by the incontrovertible evidence that EBV was a side issue, and yet,
    twenty years after the fact, the CDC has never bothered to make this point clear to the medical community.
    -ErikMW
    Incline Village CFS survivor


     
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