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Re: Dr. Nancy Klimas, A BAD EXPERIENCE
Posted by Mass Lyme on 10/31/08

    CFS is not a real illness, it's manufactured by the government and insurance companies to create a patient catagory. What
    makes you sick didn't make me sick, we are all individuals with different illnesses. Many of these so-called CFS patients have
    Lyme like me. I know someone who brain and nervous system was damaged from tear gas, I know others with hypothylamic hormonal
    deficiencies,mould, and many, many, many, with Lyme. The worst things a doctor can do is hang the CFS diagnosis around your
    neck. I have seen too much, these CFS doctors like Klimas, Bell, Levine have allowed so many patients untreated for Lyme. May
    the "Lymelight" shine shame on them.Damn them.


    On 10/21/08, ErikMoldWarrior wrote:
    > On 10/21/08, Deborah wrote:
    >> Many doctors get tunnel vision when they are working on particular illnesses that mainstream medicine fails to or
    >> inadequately addresses; it becomes the diagnosis du jour.
    >>
    >> Not an excuse, just an explanation. I have never met the doctor nor know anything about her.
    >>
    >> On another note, chronic fatigue is thought to be caused by Epstein-Barr, chemical sensitivities and/or exposures,
    >> misdiagnoses and thus unnecessary or improper treatment ( read antibiotics, steroids, etc ), or a varying combination of
    >> all three.
    >>
    >
    >
    > If you want to hear the most amazing story, read Osler's Web by Hillary Johnson.
    > The key word here is "Syndrome", to differentiate the 1988 Holmes "CFS definition" from mere prolonged fatigue.
    > In the early 1980's outbreaks of inexplicable "chronic mononucleosis" caused the CDC to postulate a vague descripion that
    > was called "Chronic Epstein Barr Virus Syndrome (CEBV Syndrome)"
    > Dr Cheney and Dr Peterson of Incline Village tried to "impress" this concept upon an outbreak of illness that occurrred
    > there in 1985, and found that this was completely wrong.
    > The immune parameters didn't match.
    > Dr Peterson called the CDC for clarification, and the epidemiologists Jon Kaplan and Gary Holmes came out to conduct a
    > quick investigation - and reassure these "confused doctors" that all they were looking at was "CEBV Syndrome".
    >
    > But Dr Cheney's evidence was so undeniable that the CDC was forced to abandon their "Chronic Mono" concept and rename the
    > illness - which wound up being "Chronic Fatigue Syndrome".
    > The patients used as prototypes had deformed B cells, low red cell mass, abnormally low erythrocyte sedimentation rates -
    > ween ONLY in less than half a dozen other illnesses, depleted RNase-L (an antiviral enzyme), extremely abnormal levels of
    > platelet debris, high Interleukin 2, and a whole slew of other weirdnesses that are too numerous to list here.
    >
    > The bottom line is that EBV was only reactivated, and was not inherent nor necessary to the syndrome.
    >
    > It is quite ironic that the creation of CFS was forced by the incontrovertible evidence that EBV was a side issue, and yet,
    > twenty years after the fact, the CDC has never bothered to make this point clear to the medical community.
    > -ErikMW
    > Incline Village CFS survivor


     
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