Re: Dr. Nancy Klimas
Posted by Bad Experience on 8/15/08
Bruce,
You could do a lot better than going to Dr. Klimas. I would not trust her, she avoids running tests that will
reveal anything that will be in direct conflict with a "CFS" diagnosis. And another downfall, she does not
follow up with her patients or return calls.
On 7/16/08, Bruce wrote:
> Has anyone seen Dr. Nancy Klimas at the University of Miami for chronic fatigue? Please write of your
> experience.
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> On 7/13/08, S wrote:
>> Robert,
>> You do make a good point but mold allergies are real and mainstream medicine knows that too. Lyme (not
>> Lymes) is real but it's not well understood, though your point is well taken there are quacks out there who
>> do diagnose such conditions with little proof and sell patients all this alternative garbage and promise
>> them they will get better.
>> "CFS", is a vague diagnosis doctors give when they lack the imagination to know what to do for these
>> patients. Many times, it's hormonal, bacterial or viral but everyone is lumped together but Fibromyalgia is
>> the champion of all quack conditions, just throw in the kitchen sink and this whopper of a so-called disease
>> describes it all. What is unfortunate is those stuck with this pitiful diagnosis which is maninly a hormonal
>> problem primarily in women with declining hormones and hypothyroid individuals. Too little is done about
>> women's hormonal issues, but you're right, it attracts quack-pot fringe doctors and so-called mainstream
>> doctors at universities who are on the payroll from big pharma.If you read the post above, the CFS doctor
>> at Georgetown sounds like a quack too, just a different variety then those in the alternative world.
>> I do want to add one thing worth mentioning, "mainstream" is not always correct. If you do your homework on
>> history of medicine you will find what was once considered a "stress" issue with a psychological base,
>> turned out to be real illnesses--such as RA, MS,bacterial ulcers--H-pylori. The doctor who discovered H-
>> Pylori (Dr. Barry Marshall) was laughed at for decades by his peers, then he won the peace prize.
>> Mainstream can be too ridgid and dogmatic in their aproach to understanding unknown disease--but quacks know
>> this too and take advantage of people--THAT is the problem. When mainstream can't explain things, they blame
>> psychology--that is a problem too.
>> The best we can do is find open minded doctors who truly want to help others and not take advantage of the
>> ill, or practice deceptive medicine.
>> I said what's on my mind but I do think your points are valid.
>>
>>
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>> On 7/08/08, Robert Christ wrote:
>>> I recommend that people google "how to spot a quack" One thing quacks always gravitate towards is
>> conditions
>>> that conventional medicine doesn't address like mold related illness, lymes, cfs, mcs, etc. Just because
>>> they believe your condition is real doesn't qualify them to treat it. Many push vitimans and tox screens,
>>> expensive blood test's that are irrelevant but boast their bill and give the patient the impression the dr
>>> knows what he's doing. Many will sell you phony cures that supposedly "boast your immune system" or "remove
>>> toxins" Shoemaker is one of the few that actually prescribes conventional medicine for an unconventional
>>> purpose. I am not familer with the colosteral medication he prescribes but dubious of the claims he makes
>> as
>>> far as it's removing toxins, and especially dubious of the VCS test to measure its progress. Anyone who
>>> knows different please correct me but I don't think the purpose he prescribes it for is recommended by
>>> conventional or main stream MD's.
>>>
>>> ACMT has an article that refutes the mycotoxin connection to illness that shoemaker and others have been
>>> touting.
>>> http://www.acmt.net/cgi/page.cgi?aid=12&_id=52&zine=show
>>> Particularly read the passage where they say that we consume way more mycotoxins in the food we eat by
>>> orders of magnitudes than inhaled even in some of the worst mold contaminated buildings. So I am not
>>> attacking the person, just his practices, and have evidence to back it up via the acmt document. Some will
>>> say the science is payed for and bogus but this is not the MO of "paid for" science. They usually use straw
>>> man arguments, or smoke and mirror tactics, or Plausible deniability like the ACOEM position paper which I
>>> believe to be fairly accurate except where they claim MRI doesn't exist in the context of CFS which is
>> flat
>>> out wrong.
>>> Needless to say very damaging to those that suffer from mold related illness.
>>> http://www.acoem.org/guidelines.aspx?id=850
>>>
>>> ACMT on the other hand made a direct statement about a specific item, "mycotoxins" that could be
>>> challenged if what they are saying were not true. But nobody has.
>>>
>>> I believe mold related illness is much more complicated than the quacks make it out to be. I believe they
>>> are cashing in on our misery and the professional witness fees they get. I have suffered from it for 12
>>> years and believe the only treatment that is effective is mold avoidance. The best bet for a sufferer
>>> barring extreme measures is to find a relatively new house to live in with no history of water damage. You
>>> don't need to pay Dr's like showmaker tens of thousands of dollars to come to this simple conclusion. Just
>>> skip the middle man and save your money for the higher quality housing you need to control your mold
>> related
>>> symptoms.
>>>
>>> Those that believe they suffer from lymes, MCS, CFS, etc. I would implore to make close observation to
>>> their symptoms and their dwellings specifically to the degree of mold in them. Don't spend money on
>>> expensive testing or remediation, your better to save it and put it towards higher quality new housing.
>> If
>>> you can find a friend or relative willing to let you stay with them (with a new house with no history of
>>> leaks) for a month or two do this. Otherwise take the money you would spend on remediation and move into a
>>> new clean house or apt. for a month or two, if the difference in your health is undeniably better "MOVE"
>>> Craigslist.com has people with brand new homes looking to rent a room out, you can get into one of these
>> for
>>> about 600 a month. Less than one visit to shoemaker or any of the other ahem "alternative medicine
>>> practitioners" and you will learn far more about your condition and how to treat it.
>>>
>>> Robert Christ
>>>
>>>
>>>
>>>
>>> On 6/27/08, mgfs wrote:
>>>> First of all I would like to say I hope everyone suffering on this thread finds the answers and treatment
>>> they need to feel well and whole
>>>> again. After spending quite a bit of time with RS recently for a non clinical reason I would like to give
>>> my thoughts on the man. He is one
>>>> of the most immature egotistical self centered people I have ever met. He is a sensationalist capitalizing
>>> on the pain and ignorance of
>>>> others. And although I'm not a mental health pro I would lay money that he has borderline personality
>>> disorder. He is about one thing
>>>> and one thing only...lining the pockets of RS and pontificating the wonders of all things RS. All you have
>>> to do is walk in his waiting room
>>>> and observe "The Shrine" dedicated to the glory of RS to know there is something not right with this man.
>>> My favorite part of "The Shrine"
>>>> is an ad he has for a diet he made up that says something like "My way works, does yours?". Now what makes
>>> this so funny is he is a very
>>>> overweight man. Folks, use your head when it comes to this guy. if it looks like and smells like, it
>>> probably is.
>>>>
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