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Re: Dr. Nancy Klimas
Posted by Bad Experience on 8/15/08

    Seattle,
    I had to laugh because Dr. Klimas does a few common tests of the immune system, sees that it's perked up but
    doesn't check why other than checking for EBV and HHV6.Immune dysfunction doesn't qualify as a diagnosis with much
    weight. She talks a good game about viruses to the patient but is a pet of the CDC and NIH. Grants and recognition
    comes first, not her patients. So she never returned you calls either, can't say I am surprised. What about the
    nit-wit she has for a secretary? Not good in following directions or answering calls either. What a terribly
    unorganized office!

    On 7/21/08, Seattle wrote:
    > I saw her and what a mistake it was! Half-baked medical care and no in depth diagnostic tests, only a few blood
    > tests.Very hard to reach by phone and those who work for her are unprofessional, she never returns calls. She
    > missed what was the causative factor involved in my fatigue.I have a good doctor now that is not involved in CFS
    > and that racket.
    >
    >
    >
    >
    >
    > On 7/16/08, Bruce wrote:
    >> Has anyone seen Dr. Nancy Klimas at the University of Miami for chronic fatigue? Please write of your
    >> experience.
    >>
    >>
    >>
    >>
    >>
    >>
    >>
    >>
    >>
    >> On 7/13/08, S wrote:
    >>> Robert,
    >>> You do make a good point but mold allergies are real and mainstream medicine knows that too. Lyme (not
    >>> Lymes) is real but it's not well understood, though your point is well taken there are quacks out there who
    >>> do diagnose such conditions with little proof and sell patients all this alternative garbage and promise
    >>> them they will get better.
    >>> "CFS", is a vague diagnosis doctors give when they lack the imagination to know what to do for these
    >>> patients. Many times, it's hormonal, bacterial or viral but everyone is lumped together but Fibromyalgia is
    >>> the champion of all quack conditions, just throw in the kitchen sink and this whopper of a so-called disease
    >>> describes it all. What is unfortunate is those stuck with this pitiful diagnosis which is maninly a hormonal
    >>> problem primarily in women with declining hormones and hypothyroid individuals. Too little is done about
    >>> women's hormonal issues, but you're right, it attracts quack-pot fringe doctors and so-called mainstream
    >>> doctors at universities who are on the payroll from big pharma.If you read the post above, the CFS doctor
    >>> at Georgetown sounds like a quack too, just a different variety then those in the alternative world.
    >>> I do want to add one thing worth mentioning, "mainstream" is not always correct. If you do your homework on
    >>> history of medicine you will find what was once considered a "stress" issue with a psychological base,
    >>> turned out to be real illnesses--such as RA, MS,bacterial ulcers--H-pylori. The doctor who discovered H-
    >>> Pylori (Dr. Barry Marshall) was laughed at for decades by his peers, then he won the peace prize.
    >>> Mainstream can be too ridgid and dogmatic in their aproach to understanding unknown disease--but quacks know
    >>> this too and take advantage of people--THAT is the problem. When mainstream can't explain things, they blame
    >>> psychology--that is a problem too.
    >>> The best we can do is find open minded doctors who truly want to help others and not take advantage of the
    >>> ill, or practice deceptive medicine.
    >>> I said what's on my mind but I do think your points are valid.
    >>>
    >>>
    >>>
    >>>
    >>>
    >>> On 7/08/08, Robert Christ wrote:
    >>>> I recommend that people google "how to spot a quack" One thing quacks always gravitate towards is
    >>> conditions
    >>>> that conventional medicine doesn't address like mold related illness, lymes, cfs, mcs, etc. Just because
    >>>> they believe your condition is real doesn't qualify them to treat it. Many push vitimans and tox screens,
    >>>> expensive blood test's that are irrelevant but boast their bill and give the patient the impression the dr
    >>>> knows what he's doing. Many will sell you phony cures that supposedly "boast your immune system" or "remove
    >>>> toxins" Shoemaker is one of the few that actually prescribes conventional medicine for an unconventional
    >>>> purpose. I am not familer with the colosteral medication he prescribes but dubious of the claims he makes
    >>> as
    >>>> far as it's removing toxins, and especially dubious of the VCS test to measure its progress. Anyone who
    >>>> knows different please correct me but I don't think the purpose he prescribes it for is recommended by
    >>>> conventional or main stream MD's.
    >>>>
    >>>> ACMT has an article that refutes the mycotoxin connection to illness that shoemaker and others have been
    >>>> touting.
    >>>> http://www.acmt.net/cgi/page.cgi?aid=12&_id=52&zine=show
    >>>> Particularly read the passage where they say that we consume way more mycotoxins in the food we eat by
    >>>> orders of magnitudes than inhaled even in some of the worst mold contaminated buildings. So I am not
    >>>> attacking the person, just his practices, and have evidence to back it up via the acmt document. Some will
    >>>> say the science is payed for and bogus but this is not the MO of "paid for" science. They usually use straw
    >>>> man arguments, or smoke and mirror tactics, or Plausible deniability like the ACOEM position paper which I
    >>>> believe to be fairly accurate except where they claim MRI doesn't exist in the context of CFS which is
    >>> flat
    >>>> out wrong.
    >>>> Needless to say very damaging to those that suffer from mold related illness.
    >>>> http://www.acoem.org/guidelines.aspx?id=850
    >>>>
    >>>> ACMT on the other hand made a direct statement about a specific item, "mycotoxins" that could be
    >>>> challenged if what they are saying were not true. But nobody has.
    >>>>
    >>>> I believe mold related illness is much more complicated than the quacks make it out to be. I believe they
    >>>> are cashing in on our misery and the professional witness fees they get. I have suffered from it for 12
    >>>> years and believe the only treatment that is effective is mold avoidance. The best bet for a sufferer
    >>>> barring extreme measures is to find a relatively new house to live in with no history of water damage. You
    >>>> don't need to pay Dr's like showmaker tens of thousands of dollars to come to this simple conclusion. Just
    >>>> skip the middle man and save your money for the higher quality housing you need to control your mold
    >>> related
    >>>> symptoms.
    >>>>
    >>>> Those that believe they suffer from lymes, MCS, CFS, etc. I would implore to make close observation to
    >>>> their symptoms and their dwellings specifically to the degree of mold in them. Don't spend money on
    >>>> expensive testing or remediation, your better to save it and put it towards higher quality new housing.
    >>> If
    >>>> you can find a friend or relative willing to let you stay with them (with a new house with no history of
    >>>> leaks) for a month or two do this. Otherwise take the money you would spend on remediation and move into a
    >>>> new clean house or apt. for a month or two, if the difference in your health is undeniably better "MOVE"
    >>>> Craigslist.com has people with brand new homes looking to rent a room out, you can get into one of these
    >>> for
    >>>> about 600 a month. Less than one visit to shoemaker or any of the other ahem "alternative medicine
    >>>> practitioners" and you will learn far more about your condition and how to treat it.
    >>>>
    >>>> Robert Christ
    >>>>
    >>>>
    >>>>
    >>>>
    >>>> On 6/27/08, mgfs wrote:
    >>>>> First of all I would like to say I hope everyone suffering on this thread finds the answers and treatment
    >>>> they need to feel well and whole
    >>>>> again. After spending quite a bit of time with RS recently for a non clinical reason I would like to give
    >>>> my thoughts on the man. He is one
    >>>>> of the most immature egotistical self centered people I have ever met. He is a sensationalist capitalizing
    >>>> on the pain and ignorance of
    >>>>> others. And although I'm not a mental health pro I would lay money that he has borderline personality
    >>>> disorder. He is about one thing
    >>>>> and one thing only...lining the pockets of RS and pontificating the wonders of all things RS. All you have
    >>>> to do is walk in his waiting room
    >>>>> and observe "The Shrine" dedicated to the glory of RS to know there is something not right with this man.
    >>>> My favorite part of "The Shrine"
    >>>>> is an ad he has for a diet he made up that says something like "My way works, does yours?". Now what makes
    >>>> this so funny is he is a very
    >>>>> overweight man. Folks, use your head when it comes to this guy. if it looks like and smells like, it
    >>>> probably is.
    >>>>>


     
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