| |||||||||
Re: Defending Shoemaker with caveat
Posted by Joani on 9/14/08
Mary Ann,
What coast are you on?
Dump that Shoemaker.
He seems to forget that WE employ him,
WE pay him.
Joan
On 9/11/08, Mary Ann wrote:
> On 5/21/08, Katie wrote:
>> Tracy,
>> I think I would listen to the doctor who will TREAT chronic Lyme. My mom had chronic Lyme and is
>> fine after 2 years of antibiotics. The post lyme syndrome is an excuse not to treat long term.
>> post lyme syndrome a way out for doctors not to deal with the illness much the way a CFS
>> diagnosis is given.
>> I don't believe in Post Lyme Syndrome as my Mother's doctor told her "saying post lyme syndrome
>> is no more true than post alzheimers. Either you got an active Lyme infection or you don't.
>> My mother was a patient of Dr. Burrascano.
>> I would only keep a doctor who will make you comfortable. You need to not only get first class
>> care but have a trust and respectful relationship with the doctor too.
>>
>> I understand about that packet. I called his office for one out just in case my mother didn't
>> get well. We were both surprised at the level of immaturity written by a doctor in his patient
>> package. I am in high school and even I know better than to send this trash to patients if you
>> expoect to run a good business. I could not believe the complaints about the millionaire who
>> didn't pay, the housewife and all these examples of him being not paid by patients. If he is
>> that paranoid about not getting payment from his patients he could tell patients to prepay with
>> a check two weeks in advance or a credit card.
>> What a strange guy!
>>
>>
>>
>>
>> On 12/23/07, Tracy wrote:
>>> Hi! When I posted last year (see above), I had only read about the doctor and read some of
>> his
>>> work. Sorry, seems that I might've misled a few readers). I wrote about my philosophy and
>>> about risk taking and in general, doctors going against the grain, theory driven treatment,
>>> etc. I was (and still am) impressed with the writing and the work that RS does (with a caveat
>>> regarding attitude). It is a warning, as there is so much political angst tied up in research
>>> on chronic illness, and it is coming out in many ways (we see it in our own discussion here).
>>>
>>> I recently went to him, and am starting the protocol. Not sure how though (more below). I
>>> totally understand folks responding to doctor and staff's odd or negative attitudes. I felt
>>> comfortable during the visit, but after that had two phone sessions where I perceived a lot of
>>> hostility on his end. In between, he sent me this fax that was incredibly insensitive. I
>>> believe that it was in response to my telling him that I had a standing appointment to see a
>>> (specific) Lyme doctor. During the second phone call he questioned why I was seeing him (Lyme
>>> specialist). Reading in between the lines, two months later, I realize they simply dislike
>>> each other. That might be putting it mildly. I was/am caught in the middle. I didn't know
>> it
>>> then though. It was so difficult and upsetting to read his fax, which was accompanied by a
>>> test result (C4a) that was so out of whack. The fax reads "You are making very poor decisions
>>> in regards to the evaluation of your health. You should've gotten an MR Spectroscopy. You
>> need
>>> to look more closely at the mechanism of your illness". And that was it. He and I had never
>>> talked about an MR Spectroscopy. Someone from his office had called me while I was on my way
>>> to see if I wanted it, and I said that I didn't know, that she should try to schedule it for
>>> me. She ended up saying I'd have to stay in MD for another few days, which I couldn't do. So
>>> I figured he and I would talk about it, but it never came up.
>>>
>>> After getting the fax, I called over to one of his staff, and was informed that she couldn't
>>> tell me specifically what the message was referring to. She said he wanted to 'prepare me for
>>> the next phone consult'. I spent all my waking hours trying to figure out what C4a
>>> specifically meant, and was so confused. Lyme or no Lyme??? It was a very difficult thing to
>>> go through. I'm still not 100&37; sure why according to him I am not making good decisions in
>>> regards to my health (I have stopped at NOTHING to gain new information, to take a thorough
>>> approach, to honestly look at all results, take into account all doctos, all research, etc. I
>>> have kept all my records, etc. Been like the model patient). So to read that, I was VERY
>>> surprised. And I took it personally. As I did the attacks on Shoemaker and his research,
>> from
>>> this Lyme doctor after I went. I have to say that I feel very isolated due to BOTH of these
>>> doctors' lack of sensitivity. It has left me unsure of which protocol to follow. I cannot
>>> seem to fit them both in, I would have to modify one. One seems to believe in Chronic Lyme,
>>> the other in Post Lyme Syndrome.
>>>
>>> So I find myself caught up in this mix, and am trying to separate personality, defensiveness,
>>> etc. from science. But I am not a doctor. I am a Licensed Psychotherapist and I cannot
>> figure
>>> this out. If you read the introduction section of the packet Dr. Shoe sends, it sounds like
>>> words from a war veteran- you can tell he has been burned before and has scars to prove it.
>>>
>>> I'm not sure what I'm getting at here, just that I want to recognize folks' experience of the
>>> backlash of this- the result of possibly burned out staff, the doctor so used to defending
>>> himself that it is projected onto patients, etc. I am not excusing it, but perhaps validating
>>> some people's experience here. And I guess I'm also wanting to ask if anyone here has tried a
>>> modified protocol (CSM 2x/day as opposed to 4, along with antibiotics at the same time).
>>>
>>> Both doctors seem very concerned about the status of my health (Dr.Shoemaker said I should be
>>> existing in a bubble, the other doc said if I continue to go without aggressive Lyme
>> treatment,
>>> I will have a worse spect scan / brain damage). I honestly don't want to ever talk to either
>>> one again. What a position to be in.
>>>
>>> There's one more thing I want to add, an ODD thing, and that surrounds the Mycometrics. Has
>>> anyone done this (ERMI) testing?
>>> Thanks in advance to your response-
>>> Tracy
>>>
> Tracy,
> We are with Shoemaker now and he is so difficult to deal with. treatment after 8 months is still
> not working. This is for Mold. He uses the C4A test big time. We are on the opposite coast from
> him and have had a hard time getting this test run correctly so have resorted to sending the blood
> frozen to him to run the test. He also did the same MRS you mentioned. We are coming up on a
> year not since first visit (which was the best side we have seen of him) and now he tells us we
> need to fly back again for a 1 year exam. There is a doctor in Florida that Shoemaker worked with
> on the Mold Warrior book. He is supposed to be very good and much nicer to work with. Understand
> he and Shoemaker have had a fallen out. Is that the same doctor you mentioned? We are so tired
> of Shoemaker's meanness and lack of caring that we are about to dump him. When you are so sick it
> just isn't fun to be treated badly by your own doctor. Very insensitive to say the least. And
> his staff is just as bad.
> Mary Ann
| You are on the mcs CHATBOARD: LATEST POSTS ALL POSTS SUBMIT POST |
| ||||||||||
|
1996 - 2007. All Rights Reserved. Please review our Terms of Use, Mission Statement, and Privacy Policy.